$5М in Grants to Support Families of Children With Special Health Care Needs

Medicare Access and CHIP Re-authorization Act funds support Family-to-Family Health Information Centers in all 50 states and District of Columbia

The Health Resources and Services Administration (HRSA) announced $5 million in new and continuing competitive grant awards to support Family-to-Family Health Information Centers, primarily non-profit organizations run by and for families with children and youth with special health care needs.

Funding for the centers was extended through fiscal year 2017 by the Medicare Access and CHIP Reauthorization Act of 2015.

“Family-to-Family Health Information Centers served nearly one million families of children with special health care needs last year alone,” said HRSA Acting Administrator Jim Macrae. “Ninety-six percent of the families the centers served reported they were key in helping families find and navigate additional community resources and care for their children.”

The state-wide centers are staffed by trained family leaders who themselves have children with special health care needs, such as cerebral palsy, cystic fibrosis, autism, developmental delay, and other health chronic conditions, and are linked to health professionals providing care.

Centers provide education, training, peer support, and expertise in navigating federal, state and local public and private health care systems for families of children and youth with special health care needs.[…] Continue reading

Family-to-Family Health Information Centers
Fiscal Year 2015 Competitive Awards

Grantee OrganizationCityStateAward Amount
STONE SOUP GROUPAnchorageAK$95,700
FAMILY VOICES OF ALABAMA INCMobileAL$95,700
ARKANSAS DISABILITY COALITIONLittle RockAR$95,700
RAISING SPECIAL KIDSPhoenixAZ$95,700
SUPPORT FOR FAMILIES OF CHILDREN WITH DISABILITIESSan FranciscoCA$95,700
HIGHPOINTE CENTERCentennialCO$95,700
PARENTS AVAILABLE TO HELP INCNorth HavenCT$95,700
ADVOCATES FOR JUSTICE AND EDUCATION INC.WashingtonDC$95,700
DELAWARE FAMILY VOICES, INC.WilmingtonDE$95,700
FAMILY NETWORK ON DISABILITIES OF FLORIDA, INC.DunedinFL$95,700
PARENT TO PARENT OF GEORGIA INCAtlantaGA$95,700
HAWAII PEDIATRIC ASSOCIATION RESEARCH & EDUCATION FOUNDATIONHonoluluHI$95,700
ACCESS FOR SPECIAL KIDS RESOURCE CENTER, INC.JohnstonIA$95,700
IDAHO PARENTS UNLIMITED INCBoiseID$95,700
ARC OF ILLINOIS, THEFrankfortIL$95,700
FAMILY TO FAMILY INCIndianapolisIN$95,700
FAMILIES TOGETHER INCWichitaKS$95,700
HEALTH & FAMILY SERVICES, KENTUCKY CABINET FORLouisvilleKY$95,700
BAYOU LAND FAMILIES HELPING FAMILIES INCThibodauxLA$95,700
FEDERATION FOR CHILDREN WITH SPECIAL NEEDS, INC., THEBostonMA$95,700
PARENTS' PLACE OF MARYLAND, INC, THEGlen BurnieMD$95,700
MAINE PARENT FEDERATION INCFarmingdaleME$95,700
MICHIGAN PUBLIC HEALTH INSTITUTEOkemosMI$95,700
PACER CENTER INCMinneapolisMN$95,700
UNIVERSITY OF MISSOURI SYSTEMKansas CityMO$95,700
UNIVERSITY OF SOUTHERN MISSISSIPPIHattiesburgMS$95,700
PARENTS LETS UNITE FOR KIDSBillingsMT$95,700
EXCEPTIONAL CHILDREN'S ASSISTANCE CENTER INCDavidsonNC$95,700
FAMILY VOICES OF NORTH DAKOTA, INC.EdgeleyND$95,700
PTI NEBRASKAOmahaNE$95,700
NEW HAMPSHIRE COALITION FOR CITIZENS WITH DISABILITIESConcordNH$95,700
STATEWIDE PARENT ADVOCACY NETWORK, INCNewarkNJ$95,700
PARENTS REACHING OUT TO HELP INCORPORATEDAlbuquerqueNM$95,700
FAMILY TIES OF NEVADA INCRenoNV$95,700
PARENT TO PARENT OF N Y STupper LakeNY$91,450
CHILDREN'S HOSPITAL MEDICAL CENTERCincinnatiOH$95,700
OKLAHOMA FAMILY NETWORK, INC.Oklahoma CityOK$95,700
OREGON HEALTH & SCIENCE UNIVERSITYPortlandOR$95,700
PARENT EDUCATION AND ADVOCACY LEADERSHIP CENTERPittsburghPA$95,700
RHODE ISLAND PARENT INFORMATION NETWORK, INC.CranstonRI$95,700
FAMILY CONNECTION OF SOUTH CAROLINA, INC.ColumbiaSC$95,700
SOUTH DAKOTA PARENT CONNECTION INCSIOUX FALLSSD$95,700
TENNESSEE DISABILITY COALITIONNashvilleTN$95,700
TEXAS PARENT TO PARENTAustinTX$95,700
UTAH PARENT CENTER, INC.Salt Lake CityUT$95,700
VIRGINIA COMMONWEALTH UNIVERSITYRichmondVA$95,700
VERMONT FAMILY NETWORK, INC.WillistonVT$95,700
WASHINGTON PAVE, INCTacomaWA$95,700
FAMILY VOICES OF WISCONSIN, INC.MadisonWI$95,700
WEST VIRGINIA PARENT TRAINING & INFO INCClarksburgWV$95,700
UNIVERSITY OF WYOMINGLaramieWY$95,700